HOME is where the heart is - and for one boy whose heart firmly lies with Newcastle United, that saying is certainly true after fundraisers helped deck out his bedroom in the club’s colours.

Kyran Richmond has a rare and incurable neurodegenerative disorder called Juvenile Batten disease which will cause him to lose the ability to walk, talk, eat or see and he is not expected to live beyond his teens or early 20s.

A campaign set up in his name raises awareness of the condition and money for his trust fund, to meet his future needs, and the Batten Disease Family Association.

Loading article content

Last year Kyran and his parents, Carl and Debbie, and brothers, Cameron and Hayden, moved into rented accommodation for six months while alterations were made to their home in Denebridge Row, Chilton, County Durham.

The family remortgaged and received a Disabled Facilities Grant to pay for the work, which included building a ground floor bedroom and ensuite shower room for Kyran.

Mrs Richmond said: “It already makes things easier for us but it will definitely help going forward, as his condition gets worse.

“His eye sight is deteriorating and he is now on epilepsy medication after seizures but he is still happy and enjoys things.

“We are really appreciative of all the support we receive.”

To make it feel more homely for the Magies-mad nine-year-old the family has spent around £1,100 donated to them by local fundraisers decorating it in black and white, complete with Newcastle bedspread, curtains and toothbrush.

Taking pride of place on a shelf are football boots signed by players Steven Taylor and Ryan Taylor and autographs from striker Papiss Cisse and manager Alan Pardew.

Kyran said: “I love it.”