TWO brothers will take on the Junior Great North Run this weekend for a cause close to their hearts.
He and 15-year-old Cameron, who goes to Ferryhill Business and Enterprise College, will use the run to support a campaign set up in his name to raise awareness of the disease.
It also raises money for Kyran’s trust fund, to meet his future needs, and the Batten Disease Family Association, which has supported the family and facilitates research into the condition.
Mother Debbie said: “They did it last year and though Cameron wants to beat his time Kyran has deteriorated so for him it is about taking part.
“They felt amazing last time, they shared a big sense of achievement and the atmosphere was fantastic.
“Cameron finds Kyran’s down days upsetting so this is a way of doing something with him, for him. We’re grateful for the support people have given.
“Lots of people want to know Kyran is making use of the funds they raise now but we also want the best for him in future, to make his life as comfortable as possible and to aid the research, every little helps.”
The boys’ father, Carl, 41, will help Kyran complete the route.
To support them visit the website kyranrichmondfundraising.co.uk or search for him on Facebook or Twitter.